Multiple specialties can work together to provide optimal outcomes for children with CLN2 disease. This approach to optimize care is essential for patients and families.1
Key aspects of disease management are covered in this video, including the multidisciplinary team approach, medication strategies, and the importance of physical therapy.
Experts have noted that reassessing the goals of care and management is important throughout the course of the disease.1
Though these are CLN2 disease-specific management strategies, some may apply to the management of other NCLs.
This concept of care can be defined by the broader idea of supporting the body, spirit, and mind of both the child and the family to optimize quality of life.1
Reference: 1. Williams RE, Adams HR, Blohm M, et al. Management Strategies for CLN2 Disease. Pediatr Neurol. 2017 Apr;69:102-112. doi: 10.1016/j.pediatrneurol.2017.01.034.
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