Patient Advocacy Groups

CLN2 patients and families can connect with the Batten disease community to access valuable support and resources

One group exists in Australia today that can help provide more information on practical ways for families, caregivers, and friends to cope with NCL diseases.

Batten Disease Support and Research Association (BDSRA)

The Batten Disease Research and Support Association (BDSRA) of Australia is dedicated to improving the well-being of patients and families suffering from Batten disease.

Please see contact details below.

Learn more at bdsraaustralia.org

Phone: 0475 428 691 Email: info@bdsraaustralia.org

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Patient Advocacy Groups

CLN2 patients and families can connect with the Batten disease community to access valuable support and resources