CLN2-specific care aims to maintain function for as long as possible and address quality of life
The goals of CLN2 disease care should evolve as the disease progresses
Experts have noted that reassessing the goals of care and management is important throughout the course of the disease.1
- Early in the disease: Goals strive to maintain function for as long as possible
- Later in the disease: Goals evolve toward maintenance of quality of life and pain control as functions are lost
Although these are CLN2 disease-specific management strategies, some may apply to the management of other NCLs.
CLN2 disease-specific care can positively impact the quality of life of the child and the family.