EU/CLN2/0031 March 2017
Multiple specialities can work together to provide optimal outcomes for children with CLN2 disease. This approach to optimise care is essential for patients and families.1
Key aspects of disease management are covered in this video, including the multidisciplinary team approach, medication strategies and the importance of physical therapy.
Experts have noted that reassessing the goals of care and management is important throughout the course of the disease.1
Although these are CLN2 disease-specific management strategies, some may apply to the management of other NCLs.
This concept of care can be defined by the broader idea of supporting the body, spirit and mind of both the child and the family to optimise quality of life.1
Reference: 1. Williams RE et al. Expert opinion on the management of CLN2 disease. Poster session presented at: The 12th Annual WORLD Symposium; February – March 2016; San Diego, CA.
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