In addition to these two groups, there are many more organisations worldwide that provide support to families and carers of children with CLN2 disease.
Andrea West
Chief Executive
Batten Disease Family Association UK
Margie Frazier, PhD
Executive Director
Batten Disease Support and Research Association USA
Meet Andrea and Margie – two dynamic leaders who are dedicated to supporting the families of children with CLN2 disease through their respective Batten disease advocacy organisations.